Friday September 20^th

11.30-12.30

Lunch

13.00-13.15

Opening

Program Committee, chairman Simon Toftgaard Jespersen, Muskelsvindfonden and director and chief medical officer Heidi Aagaard, the National Rehabilitation Center for Neuromuscular Diseases

13.15-14.15

Keynote Speaker: New EAN guidelines of ALS treatment
Doctor Phillip Van Damme, KU Leuven, Belgium

14.15-14.35

Care and research: How to enable patients and their families to support both by using the ALS app
Doctor André Maier, Charité Universitätsmedizin Berlin, Germany

14.35-15.05

Break

15.05-15.35

Being a family caregiver of a patient with ALS: What are the needs during the disease course and post bereavement
Psychologist and senior researcher Lone Knudsen, PhD, National Rehabilitation Center for Neuromuscular Diseases, Denmark

15.35-16.05

SOD1 ALS pathology
Doctor Karin Forsberg, Umeå University, Sweden

16.05-16.20

Break

16.20-16.40

Psilocybin in palliative care of ALS, an investigator-initiated trial
Associate Professor Dea Siggaard Stenbæk, Department of Psychology, University of Copenhagen

16.40-17.10

NO-ALS, an investigator-initiated ALS trial
Professor Ole-Bjørn Tysnes, Haukeland University Hospital, Norway

17.10-17.25

Incidence of ALS - A 42-year Population-based Nationwide Study
Doctor Lotte Levison, Aarhus University Hospital, Denmark

17.25-17.45

Recapping

17.45-19.00

Break

19.00

Dinner

Saturday September 21^st

7.30-8.30

Breakfast

8.30 -9.15

NeuroImaging in ALS a role in earlier diagnosis
Doctor Caroline Ingre, Karolinska Institutet, Sweden

9.15-10.15

Short presentations by young scientists

Young Scientist flash-talk session:

1.     Physical activity, physical fitness, and ALS risk

Doctor Ola Nakken, Akershus University Hospital, Norway

2.     Pseudobulbar affect in ALS: A neuroimaging study

Doctor and Ph.D. Fellow Christian Holm Steenkjær, Aalborg University Hospital, Denmark

3.     Toward the use of population and disease registries for clinical trial pre-screening in ALS

PhD Student and Clinical research coordinator Juliette Foucher, Karolinska University Hospital/ Karolinska Institutet, Sweden

4.     Ambulatory initiation of NIV in ALS patients

Doctor Janne Bøgh Stokholm, Rigshopitalet, Denmark

10.15-10.45

Break

10.45 -11.15

Robotic devices in ALS, assisting motor function and communication
Professor Lotte Strujk, Aalborg University, Denmark

11.15-11.45

New neurophysiological methods for Motor unit number estimation and threshold tracking techniques. An outcome measure in drug-trials
Professor Hatice Tankisi, Aarhus University, Denmark

11.45-12.30

Inter-Nordic clinical drug trials
Professor Peter Andersen, Umeå University, Sweden

12.30-12.45

Closing and bridging to the patient’s seminar

12.45-13.45

Lunch

14.45-16.30

Satellite event - Discuss your research ideas with patients and relatives

We are very excited to invite early career scientists to a collaborative event bringing together scientists and people living with ALS for a discussion about ongoing research and the path ahead. The session will include an overview on new research by Prof. Jakob Blicher and an informal poster-session, in which early career scientists can present their research. The session will be in Danish/Nordic.